Anyone get a TMJ lock with a seizure?

Question

I started getting TnCs last year at 31, before that all I got was fainting spells. I’ve had 4 major TnCs proper, two while I slept and two during the day where I let out an epileptic cry and convulsed and essentially lost consciousness and awareness for hours. All four seizures had one thing in common - I always get a TMJ lock, my jaw locks open and I have to go to the ER to get it reset by an orthodontist. Now I am slowly getting used to the seizures, I understand I can’t control them much and have to plan my life around them. But the TMJ locks are a problem - I am locked in my house cause I always have to be around a hospital in case I get a seizure and lock my jaw. The seizures aren’t really curtailing my life as much as the TMJ locks. Anyone here who also gets them and maybe knows if one can reset these by themselves or do we always need medical help to close a locked jaw?

Posted Nov 28, 2025, 5:43 PM UTC

17
Loading comments…