r/cfs•
ZethrosIG

Sharing what has helped my Chronic Fatigue Syndrome (ME/CFS)

Remission/Improvement/Recovery

TDLR: Multivitamin fixed my energy to an acceptable (however still stunted) level. 10min run on elliptical for anxiety management.

My background before CFS:
Since 15yrs old, athletic running (5km under 20min), gym every day, sports. Male. Slim build. 6ft, 150-160lbs. Caribbean.

ME/CFS symptoms started around 22+.
Started getting weaker and unexplained pinched nerves, especially after workouts. Symptoms get worse slowly year after year. Symptoms started becoming severe around 27+. Occasional bouts of severe fatigue that'd last a couple weeks (difficulty walking, more required bed-rest, miserable).

By 30 I was no longer able to gym, do sports, run, unless I suffer Post-Exertional Malaise (PEM). Still able to hold a 40hr sedentary job. Would occasionally crash (difficulty walking, can't work) for a couple weeks, once or twice in a year. Would end up losing what little muscle I was able to put on after a couple more years of no more gym, back to 150lbs. My required bed-rest increased from 8 hours to 10 hours.

Recently, at 32, experienced a great increase in fatigue that prevented me from even working my desk job, walking became difficult. Was really bad for a few months. Anxiety became crippling, fearing the worst. Required bed-rest increased from 10 hours to 12 hours.

What I've tried over the years:
- Alcohol (Beer, Liquor, Rum, Whiskey). In small doses (1 drink a day, not to get buzzed or drunk. Too much causes severe problems.) alcohol took the edge off, helped with symptoms/boosted my energy and kept my anxiety in check. I've been drinking for most of my adult life, and take a couple week or month breaks here and there to test its effect over and over again - I am certain they help my symptoms instantaneously. However, I've learned recently that, even at a low dose, it depresses me after a few hours. I no longer drink as the trade off is not worth it, now that I have found a better combo (multivitamin + cardio).
- Various doctors, blood tests, heart tests, sleep tests and second opinions. MRI, X-Rays, Massage Therapy. Just a bunch of things to gain insight. Only served to diagnose me, but no much insight beyond that.
- Psychotherapy. The idea is that my bad mental state was contributing to my fatigue. Talk therapy never helped, though. I often already knew everything they could teach. The fatigue was the primary factor toward any negative feelings I had.
- Anti-Depressants (Zoloft, Pristiq, Cymbalta). All gave me sleep paralysis within the first 1-3 doses/days, among other symptoms like tremors, feeling on edge, muscles felt like jelly.
- D-Ribose (Dr. Teitelbaum). Did nothing, neither positive nor negative. Tried for over 2 months, daily. I have a strong feeling Dr. Teitelbaum is a charlatan.
- "Smart Energy Capsules" by Dr. Teitelbaum. Gave me pinched nerves and sleep paralysis after one dose, similar to the anti-depressants, but not as extreme. Didn't bother sticking with it longer than a dose. I do not trust it.
- Cannabidiol (CBD) Oil. Gave me a headache on the first dose. Beyond that, nothing after taking it for a month.
- Various herbal supplements I don't remember the names of... I think Ashwagandha, Rhodiola, among others. I think they relax muscles? I recall them making my nerves even more sensitive, causing them to go numb or get pinched easier. Wasn't helpful.

What's working right now:
- A multivitamin (A, Beta-Carotene, B1, B2, B3, B5, B6, B12, D3, E, K2, Biotin, Folate). Was effectively crippled for months and felt better by the second day I took it. I have no clue what exactly I was missing because the blood tests didn't say I was deficient in anything and doctors have no explanation. I'm guessing its the extra B vitamins, but idk. I eat meat. The multivitamin is "Most Complete Multi for Men" from "webber naturals" if you're curious. I don't think the name brand is special. My memory isn't the best but I'm wondering if my occasional crashes over the years happened because I ran out of multi-vitamins or stopped taking them, thinking it wasn't doing anything and not realizing the consequences close enough to see the correlation...
- Cardio. 10min run on the elliptical every other day. Goal: increase my heart rate (120->150, in my case) and maintain it for the 10 minutes. Purpose: reduces anxiety. My anxiety builds up over the days from work, life, etc. My emotional anxiety is desync'd from my physical state. Putting myself through physical stress (increased heartrate) sync's my physical state with my emotional state, resulting in my emotional stress reducing with my physical stress as I recover. The first time I did the 10 minutes, it did make it hard for me to walk for a couple hours, but I feel better eventually.
- Regular sleep. Best is to give myself a 10 hour window to find the sleep I need, because it takes me about an hour to fall asleep and I wake up a lot because my body is just kind of uncomfortable in bed. On good nights, though, I would only sleep 7 hours and still feel great in the morning.

What might also be helping?:
- Vitamin D3 (3000-6000 UI per day). Idk if it helps exactly but I recall it helping over the years, enough to put a reminder to take them constantly throughout the day.
- Calcium Magnesium Zinc (333/167/17mg per day). Idk. I was having panic attacks lately (solved with Cardio), but before I figured out my solution, my doctor made a point that the fuzziness i feel in my body is from calcium not being passed around in my blood enough due to the temporary panic attack. I took the thought and decided to get Calcium supplements, plus Mag and Zinc with it, screw it. Idk. May be helping.
- Omega-3 Fish Oils (1000mg per day). Idk. People generally say it's good.

What I'm able to do in a day now:
- Walk 30+ min a day going to/from work.
- Work a 40hr/week desk job.
- Work on personal desk hobbies 10-20 hours per week.
- 10min elliptical run every other day.
- Occasional social event, maybe 1-2 per week. Does make me tired the next day, but I typically have a beer when I'm out so I think that is the main problem...
- Required bed-rest: 7-9 hours. I do take an hour to fall asleep, but that has always been the case since i was a child.

Just sharing in case it helps someone. I hear of a lot of people complaining a lot on the subreddit, but once they feel better, they forget this subreddit ever exists. Just thought I'd contribute to the "this helped me" threads.

Posted Dec 1, 2025, 3:02 AM UTC

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