Lgmd2c

If anyone has experience with this or knows an excellent specialist can u please post their info? I have two young daughters and a specialist they see locally who never saw their subtype. I am in Florida but University of Gainsville isn’t taking new patients at this time - and I want someone who actually knows about 2C that has patients with it that can give me some real perspective. There is also Neimors and Univerisry of Miami but I haven’t seen anyone impressive with knowledge on this rare disease that I could get my daughters in with. Not that it will change much but I would love to have them see someone that actually knows what they are talking about. Any tips are appreciated 🙏🏽