Anyone with experience using Luvometinib Tablets for LCH, histiocytic sarcoma, or NF1?

https://preview.redd.it/qao90apq5w4g1.png?width=900&format=png&auto=webp&s=9cecd7bee0b1d32742d0c0d0c520c50acb55debb

Hey everyone,

I'm dealing with a family member who's been diagnosed with Langerhans Cell Histiocytosis (LCH), and the docs have mentioned potential treatments for related conditions like histiocytic sarcoma or NF1. I've been doing some research online and came across info from DengYueMed about Luvometinib Tablets as a possible option for these indications.

Has anyone here tried it or know someone who has? What were the side effects like, and did it help with symptoms? I'm just trying to gather real experiences before we discuss it further with the specialist. Any insights or resources would be super appreciated!

Thanks in advance!