I was diagnosed with UCTD last year and had been on HCQ ever since Since then had minor joint pain and episodes of Reynauds but was okay other than that. 

One thing that started happening was very frequent episodes OF UTI. Doctor kept saying it’s unrelated but to me it did not make sense. 

Had a bad migraine in September for the first time in life. 

Now since two weeks, have been getting symptoms one by one. Started with a 3 day headache followed by pain in abdomen which people thought is a stone but nothing come up anywhere in the scans and then started giving meds for UTI. Pain got better, but I started having fever since last friday. Also having chest pain since Monday. Reynauds has been a daily occurrence. 

He has put me on prednisone 5mg for 10 days and increased HCQ to 300 from 200. It’s been a couple of days, low grade fever twice a day is still persisting. And joint pain. I just don’t feel good though. Pain in large and small joints across the body. Also getting this weird rash, there is a burning sensation that is there 70-80% of the day. Does anyone else get it ? 

My larger question of posting here was do you also get such unrelated seeming manifestations of your disease that you have no idea how to explain given Rhuematologist keeps saying they are unrelated. 

Also posted since this is technically my first flare up since diagnosis. Feels like this is such a silent disease, people don’t get it, I don’t know how to explain it to family, when i told them i had fever for 5 days, they said take a pcm, everyone gets a fever, husband is the super supportive though. 


 

Seeming like a flare up but some symptoms are unexplainable