Discharged and confused

Question

I understand what PNES is, but I strongly believe I have focal aware seizures that might not be picked up in an EEG. I had 2 episodes, and my neurologist said the EEG's were clean. So she immediately ruled out epilepsy.

You can't just rule out epilepsy from clean EEG, right? She even said what I experienced wasn't a seizure, but PNES has an S in it for seizure, right? I feel like her knowledge is outdated. She refused to even let my try anti-epileptic medication because I "don't have seizures".

So I spent 3 days in the hospital for them to tell me to go to psych. I have a second opinion from a neurologist on the 16th, but I don't know how I'm going to manage until then. I have seizures about every 2-3 days, and I went in for a really bad status epilepticus.

Do you think she acted too fast on ruling out epilepsy?

Posted Dec 4, 2025, 9:48 PM UTC

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