Is anyone afraid that by the time an effective/curative treatment comes it won’t even matter?

I would be thrilled if there were to be a treatment right now or even within the next few years because that would mean I’d get a second chance at life and would still be young enough to catch up with my peers. However, it’s more likely that truly curative treatments are decades away. Assuming we’re all still alive by the time treatments come, do you ever worry that it just won’t even be exciting anymore?

For example, I feel like the only way to adapt to this illness is to accept that you have it and forget about your old healthy life entirely. Forget about things you’ve always wanted to do that you can no longer do, like travel. If you’ve accepted your life as a homebody and a cure were to come and you were able to travel, would you even want to at that point? On another note, maybe this illness has fucked up your life so much that suddenly becoming healthy wouldn’t even matter anymore because the damage is irreparable. I might be in my 40s or 50s, perhaps older, without any savings, no credit, no home to call my own, no career, no partner, and no friends…what would even be the point? My life will be almost over and I’d just be getting started trying to build a somewhat comfortable life for myself.

I don’t wanna sound ungrateful because relief from this suffering is always welcome but at the same time I can’t imagine ever being truly happy after this disease has fundamentally changed me as a person and destroyed my chance at building a life in my youth.

Posted Dec 5, 2025, 3:20 PM UTC

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