Anyone else have sluders neuralgia?

I have sphenopalatine ganglion neuralgia, which was historically known as sluders neuralgia. Apparently scientists are split but leaning more towards classifying it as a subtype of cluster headache or TAC rather than its own thing. I’m trying to find others experiences with this condition but don’t know where to find them so here I am. 🙋‍♀️ Currently the only thing that helps me very much is warmth. Breathing steam especially is dramatically helpful but wears off quickly too. It does actually seem better if I get my heart rate up with activity, which i don’t really understand….Flonase helps but very minimal difference. My dr prescribed propranolol but I worry it might have the opposite effect since that brings blood pressure down? Only been two days so we shall see. I am going to ask for a SPG block next time now that I know about them. I don’t know why she didn’t do that first as it is apparently supposed to be really effective. 🤷🏼‍♀️

Now that I am learning more about cluster headache… I’m nearly certain my mother gets these and has been misdiagnosed. She hasn’t had one in almost 2 years luckily, but was originally diagnosed as having migraines, then occipital neuralgia. I’m not sure which meds they gave her but they did not help. She would get these watery eye and nose. It woke her up from sleep every night and she just could not get rest because it kept waking her up so she was so tired she’d fall asleep any time she had relief and sat or laid down only to be jolted up from it after a bit.

Cluster headache is fairly rare as I understand? So it might be crazy to think we both have it but maybe a genetic proponent to it. 🤷🏼‍♀️