Looking for others with Ehlers Danlos Syndrome as I raise awareness through CBC

Hi everyone, does anyone here have Ehlers Danlos Syndrome, or know someone who does? I’m dealing with significant challenges related to EDS, including having to go to the ER because of complications. I’ve lived with this disease for 21 years, and it has left me in extreme pain every day. I’m now planning to bring my situation forward to CBC, not just for myself but because I know many others are affected and facing similar barriers.

I believe that if we come together and push the provincial government as a group, we can create real change. We deserve to have the highest quality of life that medicine can offer. If you’re willing to share your experiences or connect, I would really appreciate it.