Does anyone else feel extreme pain during an RLS episode?

Question

Hi all!

To preface: I also have epilepsy and my seizures do not cause pain to my joints/muscles (unless I fall or hit something)

Whenever my RLS is rough, I feel a sharp, repetitive pain shoot straight up from essentially my toes to pelvis. It takes over my whole leg. I end up with muscle spasms so bad I go for walks throughout the house.

I’ve tried: gabapentin, baclofen, propranolol, and vitamin supplements (magnesium and iron mostly)

I’m at the point of taking naproxen in the middle of the night. Any suggestions? I can’t even sit in the car some days!

Posted Dec 7, 2025, 5:07 AM UTC

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