r/disability•
turquoisestar

Seeking some advice on getting medical care/disability

Question

I have thoracic outlet syndrome, which is a nerve entrapment around the neck/clavicle/chest area that causes me pain and numbness, sometimes weakness. I am on Medi-Cal. There is a surgery for this but I have not been able to get it covered bc basically the surgeons don't take Medi-Cal. I also was trying to get a breast reduction surgery which sometimes can help, is much lower risk, my PCP agreed, I got approved but again cannot a surgeon doing it who will take it. I've had to move a lot which makes things hard. Right now I'm at this career crossroads and I would really love to be at my optimal health, but it seems like I have to change careers first to get better insurance to get surgery to immediately have to take leave from any new career. Ideally I would get surgery beforehand. This is year 12 for me with this condition, and I am considering if I should finally just apply for disability. I really want to work. It would be awesome if work could cause me minimal pain.

I am currently substitute teaching. I have a DOR case and am considering a teaching credential, or masters in clinical psych to become a therapist. I feel pretty tired from teaching but it is definitely less aggravating than the career that caused the injury which was digital marketing. During the last 12 years I got really into healthcare and pursued a degree in physical therapy. I started PT school, had lots of issues with accomodations, and ultimately was not able to succeed despite trying very hard. I am really tired lol.

I don't know how to get a good enough job to get surgery, in order to function better to get a good enough job. Is there a solution for this? If I apply for ssdi, maybe I could get on medicare which might help? If I work enough to earn $2400/month maybe I can get covered California (although I heard trump cut funding a lot?) and then finally get a doctor who will help me. I am very glad for medi-cal, I read everyday aboth people who skip the ER bc of no insurance and I'm glad there is something, but I really need support for my ongoing somewhat rare chronic condition. I know way more about my condition than most doctors I've dealt with. Anyone dealt with this kind of issue? I am afraid to apply for disability because there has been so much stigma with this whole injury.

Anyone with tos specifically have advice on treatment? My nerves are compressed at pec minor and my scalenes, so I'm considering a pec minor release or scalenectomy, or again just a breast reduction bc they're so low risk. Some friends suggested a corset??

T.i.a. - very hardworking, very frustrated disabled person. I am likely hypermobile, and also have ADHD depression and anxiety. Huzzah.

Posted Dec 7, 2025, 5:08 AM UTC

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