my dad passed away with ILD

Hi all, Sadly my dad passed away from this horrible disease today. He was diagnosed in 2019 as he always complained about breathlessness and shortness of breath. Past few years he was taking ninatedib which didnt really suit him, he went to a smaller dose and managed to manage the side effects of the dose.

My dad recently came back from holiday from Spain. My dad was fine before and during the holiday. His usual self. He became ill and had fever etc for a few days. Then he complained to my mum about breathlessness so they went to same day emergency care and he had a X-rays. He was admitted to hospital and they said he had pneumonia and all the broad spectrum tests were coming negative. They were treating him for all common bacterias. He moved into a respiratory ward where they finally say he had pcp pneumonia which attacks those with already weak lungs. We really thought my dad would fight through this all and come home but eventually he detoriated and his lungs couldn’t hold on any longer. We got to say goodbye but it doesn’t make this any less easy. I am not sure why I am posting but I just hate this horrific disease. I am so glad his suffering ended.

Posted Dec 7, 2025, 11:55 PM UTC

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