What do I do now?

Seeking advice

Hi,

I got hyperacusis at 16, am now 42. The diagnosis has had it's ups and downs.

Over the last five years it's been disastrous. The first time ever I've felt everything actually getting so much louder than before.

The old "It feels horrible for a while (about a few months), and then we're back", doesn't work anymore and it's only been getting worse.

This summer was strange. I was sick. My brain turned to shit and I turned incontinent. I tried suicide, but the damn thing just hurts too much.

I was sent to a psych ward. For some reason, things turned out pretty well. For a while. I'm now worse off than ever before, and my diagnosis was first MS, then CADASIL, and now they don't know for sure.

Then I found this subreddit. I never tried Chlomipramine. I'm now at 75mg. I guess it's too early to say if it's working or not (probably not).

Thing is, I'm still waiting to do an X-ray. I did one earlier under anesthesia when I was ok-ish, but I don't know if it triggered something in me, making me worse than ever.

So, what do I do now? Do I go with the X-ray, with the implied risk of waking up with an even worse hyperacusis?

Thanks

Posted Dec 9, 2025, 8:36 AM UTC

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