r/lymphoma•
pekoepie

Lumps on neck?

General Discussion

Diagnosed with CD8+ small/medium CTCL (or CD8+ follicular helper CTCL they never really picked) earlier this year.

I've posted some questions before as well and general feelings of not being heard at my last appointments where they said I was 'fine' despite my concerns and the hematologist saying to my face that they've never had a CTCL patient before and don't know anything about it besides what they learned while in school from "textbooks".

A few days ago I noticed a lump on the right side of my neck. 3 days later another one showed up next to it, don't really have any symptoms like being sick or having a cold/flu and they don't hurt to touch or really move. The 'bigger' one is more firm. and there's also another lump that showed up on the left side of my neck.

3 months ago another lump was noticed on my back. Got an ultrasound but I still haven't gotten results back despite calling my GP 3 times for a follow up :/

I'm trying not to freak out before my GP and derm (luckily got them booked same day) next Monday but until then, am I just being paranoid? Is there anything else it might be? Or anyone's experiences with this?

I know we're (most of us maybe) aren't medical professionals but since getting diagnosed, anytime something's amiss with my body it's harder to not freak out.

Id appreciate any insight. thanks 🥲

Posted Dec 10, 2025, 2:46 AM UTC

10
Loading comments…