new here, need some advice!!

Diagnosis Help

hey everyone, i’m new to the behçets world and this subreddit has been helpful. i have a (few?) question(s) for the vagina havers here, or anyone who relates. i’d like to mention that my diagnosis isn’t official yet, but all of my providers are leaning towards behçets. also, my moms side of the family is lebanese and we live in the states where it’s RARE.

i started showing symptoms early last month: high fevers of 103+, swollen skin around eyes (no vasculitis), vicious night sweats, and most importantly, a brutal and stubborn ulcer on my lower left labia. everything else has since cleared up, but the labia ulcer is going absolutely NO WHERE. it began as two and merged into one. now it is probably about an inch or maybe even 3cm long. the ulcer ruptured for the first time around nov. 13th and the pain was unimaginable. i couldn’t pee without screaming or crying and had difficulty walking/moving. had to pee in a sitz bath too, GROSS. i have a pretty high pain tolerance, so that experience was more than humbling to say the least. throughout november i have been on oral AND topical steroids, antibiotics, and my rheumatologist started me on .6mg of colchicine twice daily. i’ve been taking colchicine for about two weeks now. nothing really seems to work. only topical numbing agents which aren’t enough sometimes. fast forward to yesterday, the spot on my labia was feeling tender again and this morning the burning sensation was back. luckily, this go around is not as bad as the initial breakout, though it’s still uncomfortable. i just checked before writing this and i have a new, smaller lesion on top of the already existing one. it looked like a crater before this happened. my rheumatologist and primary care doctor said that ulcers can take a few weeks to heal, but this seems excessive since it’s been a month. is this healing time normal? does this make you lose your period as well? does anyone have any advice on how to heal fast and deal with this? i left out some details as to not go on forever, so if you need any more information please let me know!! i hope this can help some folks out and ease some nerves about this specific aspect of behçets. thanks for reading (if you got this far lol) and being here!

Posted Dec 10, 2025, 2:49 AM UTC

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