diagnosed but not??
The hospital i go to has a website where you can access all your notes, test results, and such from your visits to the hospital. I had my first seizure in 2023, MRI showed nothing so i guess they thought it was a one off thing. Didn’t have another one until this year, and since then i’ve been on lamotrigine and dilantin (still having focal seizures and one day where i had 3 tonic clonics back to back, 2 in hospital thankfully) Anyway long story short i had a 25 minute status epileptic seizure where i had to be intubated and put in a coma for two days.
I read in my notes “diagnosed with epilepsy” which is the first time IM hearing this, and i’ve been in contact with my neurologist who hasn’t told me this information either.
So basically my question is, is there a reason on their notes they say I’m diagnosed and everything they’ve seen would lead to epilepsy, but they haven’t told me this information yet?
Sorry if this seems like a word vomit i am still recovering and i feel like my meds make me illiterate LOL
Posted Dec 10, 2025, 3:03 AM UTC