My Partner Has Marfans. How Can I Better Help Her Regarding Chronic Pain?

Hello. I apologize for taking up space which may not be mine, but I seek help.

I have a better than average familiarity with chronic pain and connective tissue disease, as I have an unspecified hypermobility disorder (probable hEDS) as well, but the nerve pain aspect from the 35° scoliosis as well as the height complications are foreign to me.

I suspect she has Marfans, she suspects she has Marfans, our friend with Marfans suspects it, the only reason we're not doing much regarding formalization of any diagnosis is because we're American college students with mediocre healthcare at the best of times.

She has limited success with most of what I have to offer when she is at my home. She does manage her pain rather well usually, but this winter has been hellish for both of us.

My pain care routine is generally a combination of aspirin, ibuprofen, caffeine, CBD, massage therapy, yoga, PT exercises, and the use of a cane. Muscle relaxers, pain relievers, topical pain relief (biofreeze), and certain stretches help her - but it is currently complicating her quality of life by a notable metric and I would like to know how I can help, if I can help.

She is a delight. Flair ups happen. I can accept this. But if there's something I'm not doing out of ignorance, please educate me or point me somewhere I can be educated.

I appreciate your time. 🙏