My tongue is so inflamed I could cry…if I could cry

Postdiagnosis vent/questions

My tongue issues have been next-level for 10 months now, but just when I think it can’t get worse, it does. The burning is relentless. At night I clean my teeth/tongue and slather everything in Oral7, close my mouth and put my head under the blanket because even the slightest movement of air when I’m breathing will make my teeth and gums ache and warmth seems to make things slightly more bearable. I saw the dentist again yesterday and everything is fine dentally. I’m absolutely at the end of my rope, I can’t eat or taste anything, I’m losing more weight (I’ve lost something like 25Lbs this year) I can only drink flat water, I’m in constant pain, I’m fighting with my husband and I can’t even remember why. Three weeks till my first Rituximab infusion…if it doesn’t help, I don’t know what will. Feeling so desperate tonight. 🥺

Posted Dec 13, 2025, 10:32 AM UTC

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