r/Endo•
Ok_Effective_8332

Flare-up day five

Rant / Vent

I (30F) need some support from people that understand what this disease is really like.

I was diagnosed with endo in 2016 and adeno just this year. Flare-ups can last days, bad ones up to a week, sometimes longer. Today is day five of near-constant pain, cramps, severe fatigue, brain fog, gastro issues, muscle aches.

I've taken as much pain medication as I can, which frankly doesn't do much. Edibles help but I can't be high all the time. I've spoken to my doctor about how bad it gets, and she said the next step is more surgery. But I can't afford it and don't want more scar tissue.

I'm just feeling really defeated. And angry. I have a lot of childhood trauma related to being sick when I was young, which I'm working on in therapy. I have a very hard time talking about my illness and asking for help.

But these flare-ups are so hard. I've had to miss work, cancel plans, miss out on doing things I love, can't excerise. I don't know how to keep doing this. I get panic attacks. I get so depressed and triggered and I feel very alone.

Any kind words of support from people that understand are very welcome.

Posted Dec 13, 2025, 10:34 AM UTC

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