Is anyone else going crazy from lack of sleep here??

Vent/Rant - Advice Wanted/Ambivalent

My beautiful autistic toddler just doesn’t sleep, never really did. When she was a baby, she would often skip naps entirely during the day (see since 6 months which is WAY too early) no matter what I tried and since about 18 months, has frequent wake ups and can take hours to settle down for bed (unless she takes melatonin). She dropped naps completely a while ago despite the fact she also struggles with night time sleep—and I’ll be honest, it’s so hard.

I know it’s not her fault at all—she can’t help that she has multiple sleep disorders/low sleep needs/insomnia—but sometimes I just wanna cry from how exhausted I am. I’m lucky most nights if I get between 2-5 hours; the typical being about 1.5-2.5.

Is anyone here OAD (at least partially) due to something similar? This is part of (but not the entire) reason for us but I feel like people don’t talk about this level of sleep issues past the first year.

And if your kiddo did struggle or is, any tips? We already do melatonin, light therapy, black out curtains, compression sheet and a consistent bedtime/sleep routine. She is just so strong willed that I’ve actually caught her pinching herself to keep herself awake (she has a history of SIB during autistic meltdowns or when super anxious so I think it’s at least partially cause she’s so anxious about the idea of sleeping).

TIA for listening to me vent.

Posted Dec 29, 2025, 7:48 PM UTC

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