How To Travel While Mod-Severe

Anyone have any tips? My safe, happy place is the coast 2.5 hours away by car. Since my early teens, a couple times a year my mom and I would drive down, stay at a specific hotel, and just listen to an Agatha Christie, do jigsaw puzzles, and read on the beach. I haven’t been in almost a year since my condition worsened (went from moderate to severe after agreeing to visit extended family in Hawaii. The flight back left me so sick I had to be hospitalized. but I am now back to mod-severe/at a 17-20 on the Bell scale)

I’m dying to make it over, and I feel like this is the safest possible travel: a relatively short distance by car; a hotel I know has a comfortable bed; and plans to just lie on a couch/bed, listen to the ocean and audiobooks, and decompress. Here are my two questions:

  1. what the right timeframe is: I don’t want to go for too long as I know I can’t get as deep of rest out of my totally dark, silent room; but also I don’t want to do the drive without time to recover in between. I’m thinking two nights is the right balance?

  2. I’m looking for any tips people have on preventing PEM/recognizing overexertion; important stuff to bring; personal experience (ie is this a huge mistake); or just general advice.

Thank you!

Posted Jan 11, 2026, 8:01 PM UTC

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