My Headaches NEVER Stop

I have constant headaches. But it's not exactly a headache. I haven't been able to identify any specific triggers or patterns. Ibuprofen slightly takes the edge off, tylenol is completely ineffective, excedrin makes the headache worse, and caffeine doesn't seem to help at all. The ONLY pattern I've been able to figure out is that there are high levels of inflammation in my body every single day. I often feel slightly feverish, I often have mild body aches like I have the flu, and the level of inflammation fluctuates from high to moderate. It never stops or goes away. I can always feel it. When the levels are low, it's a soft ache in the back of my head. When the inflammation spikes it feels like a vise is squeezing my brain and my head is SCREAMING at me that something is wrong. I also have these weird, deep burps and a roiling stomach (vagus nerve?) when the inflammation is high. The pain and inflammation tends to focus in my head and neck area, especially in my sinuses. After 1-3 days of high inflammation, the pain will evolve into a migraine that becomes ice-pick pain focused around my left eye. Whenever I try to lessen the pain with a hot pad, a cold pack, or a PEMF therapy device, the pain just moves somewhere else, to a different area of my head. Once, when I thought I had found a treatment that would finally help with the pain, my headache responded by moving to the very center of my brain and intensifying, as if it was trying to hide from me so deeply that no medication could ever reach it. I swear, the pain has a mind of its own and when a treatment works once, my seems to body suppress it when I try it a second or third time.

Sumatriptan and ibuprofen helps when the pain evolves into a migraine, but after I take them, the moderate level of inflammation is still there. And after a day, or two or three, I have a migraine again.

I have been treated for SIBO, CIRS, by an NAET doctor for 7 months for allergies and sensitivities, treated by an alternative medicine chiropractor who does neuromuscular reeducation techniques for another 8 months, but the inflammation and headaches are still there.

It seems clear that until the inflammation stops, all of my other symptoms (roiling stomach, disrupted digestion, brain fog, fatigue, deep burps, body aches, sinus pain, migraines...etc) will continue. Another weird detail is that my ear canals around my eardrums are constantly red and irritated. But there isn't a visible cause. No one has been able to pinpoint the reason for the inflammation. I have baffled multiple doctors, and multiple alternative medicine doctors. My latest attempt was a hormone specialist and hormone treatments, but that has not been effective either. The hormone specialist suspects that the constant inflammation is being caused by a hormone imbalance, which makes sense, but back in 2023 I was tested by a different hormone specialist and all of my levels were normal, and I've been having continuous headaches as far back as 2018.

The inflammation is weird. It's not high enough to put me in the hospital, or damage my kidneys, or make me seriously sick, but it's always there, and high enough that it has a serious effect on my quality of life. When I've traveled to other states or countries, the inflammation has still been there, so I don't think it's being caused by mold in my house or anything like that. I have seriously considered going to a neurologist, but I keep getting a strong feeling that a neurologist can't help. I'm not opposed to seeing a neurologist, but I keep having a strong feeling that the issue isn't a neurological issue that can be treated with psychotropic drugs. My headaches don't fit the usual patterns for migraines. I don't have auras, or sound and light sensitivity (only a little bit),

Here's some medical background, if it helps:
I started to be chronically ill back in 2017-2018 (brain fog, difficulty concentrating, constant sinus pain and fatigue, swollen jaw, entire weekends of sitting quietly at home because I didn't have enough energy to do anything, constant digestive issues). I was diagnosed with SIBO in 2019, but in 2020, the treatments didn't seem to improve the bloating, the seesaw between diarrhea and constipation, or the brain fog. I was on the keto diet for 18 months and tested negative for celiac disease.

While I was on the keto diet, I had to eat more than the usual ratio of protein. My body didn't seem to absorb protein very well.

In 2021, I stopped the keto diet because I wasn't seeing any improvement. I avoided vegetables for another year, but was able to eat salads again in 2022. My fatigue improved, but nothing else did.

In 2023, I started seeing a therapist. I wondered if my physical symptoms were maybe caused by something psychological. Unfortunately, there was no improvement in my physical symptoms. I went to a hormone specialist, but the only thing she could tell me that was my liver function was low. Everything else looked normal. I tried to avoid Ibuprofen as much as I could (I didn't want to mess up my stomach again), but when my headache pain was so bad I couldn't sleep, I would take it. My brain fog, mild body aches, and headaches wouldn't stop. I hated flossing because my gums would hurt way more than normal.

In 2024 I started getting treated by an NAET doctor. I had weekly and bi-weekly appointments for 7 months to treat allergies, imbalances, and sensitivities. Unfortunately, there was no improvement in my physical symptoms.

In October 2024 I hit an enormous crisis--the Ibuprofen stopped working on my headaches, and my headache pain was so bad that I knew I would probably become suicidal if something didn't change. I went to an urgent care clinic. They gave me the headache shot, but it only reduced the pain by about 50%. I set up an appointment with my doctor, he prescribed sumatriptan and diagnosed me with CIRS, Chronic Inflammatory Response Syndrome--either I'd had a severe exposure to toxic mold at some point, or my DNA made it difficult for my body to get rid of toxins.
I was very hopeful, but after a few months, I didn't see any improvement with the CIRS treatment, even though my blood tests showed incredible improvement! The sumatriptan helped with the headaches, but I was taking it too often and had to restrict my doses to only once a week.
My doctor recommended an alternative medicine chiropractor who did neuromuscular reeducation techniques to reactive lazy muscles and organs and activate healing. After about 4 months, I saw a difference in ONE area--I wasn't constantly constipated anymore. Hooray! I hoped that would be the answer, that my systems to regulate toxins would go back to normal and I would feel a lot better.
Unfortunately, that was not the case. The headaches were still relentless, and I still had brain fog. Once in a while I would have a couple of good days, but they soon disappeared. So here I am, in 2026, with a mountain of doctor visits and treatments behind me, and still no closer to figuring out what is causing the constant inflammation in my body. Any ideas?