I’m desperate

Symptoms:

Constant headache Head pressure Pain if I move my head too fast Pain when looking down Severe headache if I cry Headache from coughing Head pain with straining Cannot run or jump due to the jarring will cause headache Cannot jump into a pool (headache) Cannot wear ponytail or any heavy hat/helmet Neck and head pain when sitting upright (head floating, no support) Pressure on head from pillow causes pain Pain with eye movement Pressure feeling in eyes Burning pain in back of head Head feels like a bowling ball Balance issues/unsteady Dizziness Dizziness when looking to either side Heat intolerance Sensitive to touch/pain from even slight touch Severe daily fatigue Sensitive to light Severe Neck pain Numbness in shoulder down to fingers Fingers lock up Lumps on base of skull/neck Memory/cognitive decline Generally feel weak Sleepy during the day Numbness in feet (maybe neuropathy, unsure) Constant Ringing in ears Faint smell of cigarette smoke always Nausea caused by pain

Tests: MRI brain w/w/o contrast - normal (mild white matter lesions) CT Angiogram w/w/o contrast - normal Lumbar puncture : pressure less than 10 X-rays of neck - arthritis

Doctors say no to : chiari malformation, idiopathic intracranial hypertension, MS, cervicocranial instability, POTS

Meds/treatments:

• Emgality
• Imitrex
• topamax
• flexiril
• tizanidine
• ubrevly

Been to several neurologists. No answers. I can’t live like this anymore.