What are you all tracking on a daily basis?
Trying to get a sense of what a daily routine looks like for people with EDS, as well as POTS or MCAS.
What apps are you all using, to track what specific symptoms, medications, food etc?
On a personal note, I am looking into creating an app that is specifically tailored for the EDS/trifecta, and I'd like to have a better sense of how good the current solutions are, and where they come short.
Posted Jan 19, 2026, 5:32 PM UTC
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