r/scds•
coastal-blue

Newly diagnosed with SCDS - Do your symptoms worsen then improve?

Hi Just joined the sub as I have CT confirmed diagnosis of SCDS but not yet confirmed with VEMP. Waiting on that. I'm in the UK so it's all waiting for the NHS. My query is that my symptoms came on very suddenly last year - the usual symptoms, pulsatile tinnitus although I have had 'regular' tinnitus for years, hearing loss, fullness, sensitivity to noise etc. But they did then over a period of a few week get much better. I still have all the same symptoms but to a much lesser extent that the 'acute' onset. I mentioned this to the ENT consultant but he was very vague and said they just don't really know much about the condition and that it's very individual. Has anyone else experienced this with more acute symptoms that then improve to a kind of baseline?

Posted Jan 22, 2026, 8:12 PM UTC

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