Diagnosed without the seizures
I’m going with the success/positivity flair even though I’m feeling pretty devastated.
It’s not that I have a diagnosis— I guess that’s the positive and success part is that at least I can stop striving for tests of every sort under the sun to find out what is wrong with my body.
That’s the devastation:
- There is something inconsistently wrong with how my body works
- There’s nothing in this diagnosis that helps interpret what’s going on any better for making decisions about whether something is safely managed at home versus something that needs medical intervention.
Just sitting with it. Hopeful about retraining as a focus. Exhausted by the administrative load.
This space was recommended so here I am. Hi.
Posted Jan 25, 2026, 12:19 PM UTC
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