Migraine but mostly constant pain under scalp 24/7 - very close to allodynia
Hello everyone,
I would really appreciate some insight or shared experiences.
I've got Migraine for year and half
I have completed the full course of Topamax (topiramate) and Tofisopam as prescribed by my neurologist, but unfortunately I did not notice significant improvement.
For the past ~2 weeks, I have been taking supplements including:
• Magnesium glycinate
• CoQ10
• Vitamin B2
• Vitamin B12
So far, I also have not noticed any clear benefit from these.
The most noticeable improvement has come from lifestyle changes, especially:
• Reducing my computer work intensity
• Avoiding carbohydrates
However, my main symptom persists:
I have a constant, dull, aching pain on a specific area of my scalp, present almost 24/7 except when sleeping.
It does not come with typical migraine symptoms such as:
• Light sensitivity
• Sound sensitivity
• Eye pain or orbital pain
What I experience instead:
• Surrounding scalp areas are painful only when touched (similar to scalp allodynia)
• But one focal area sends continuous pain signals even without touch
• The pain becomes more noticeable toward the end of the day
• When I pull the skin above my eyebrow and close my eye, the pain signal temporarily disappears
Because I currently have gastritis, I avoid caffeine so I cannot experiment it at this time.
My concern is whether:
• I should return to my neurologist for re-evaluation, or
• Continue being patient with supplements and workload adjustment
I am particularly worried that if this condition worsens or if more symptoms appear, it may become irreversible. I understand that migraine is generally considered a chronic condition that can be managed but not cured, and that concerns me.
Has anyone experienced a similar scalp-dominant migraine or nerve-related pain pattern?
Did changing preventive medication, treatment strategy, or diagnosis help?
Thank you very much for reading.
Posted Jan 25, 2026, 12:19 PM UTC