So I’m a 24 year old dude. Have been having low t symptoms and sexual dysfunction for about 2 years. Got an mri in August and was diagnosed with a prolactinoma after two prolactin tests measuring at 25, and 34 ng/ml. Started caber October 23rd, and for about 2 weeks, I actually felt normal for once, sexual function literally increased to undeniable heights, mood and energy felt amazing, and I was genuinely excited to start being normal again.

Fast forward to November 21st, I begin feeling like shit, sexual dysfunction back, and pretty much all process seemed to reverse. Got tested and my prolactin was crushed, -0.373. After finding out I asked my endo and she said negative prolactin wasn’t causing any of the things I was experiencing and told me to keep taking the advised dose. 0.25 x2 a week. After reading on how extremely low prolactin is also very bad for men, I decide to reduce my dose to 0.25 once a week for 2 weeks, and then 0.125 twice a week. Measured again in January, and to  no one’s surprise, I measured at -0.232… so after the extreme over suppression of caber, she told me to go off. I asked if I should keep taking blood tests to see if my prolactin rises, and she said no it wouldn’t and to just see her in April for a repeat test and visit

I thought this was total bullshit, so in the event my levels come back up, I wanted to know, so I, not her. I ordered a test to see if they’d go up. So yesterday I tested, just a little over one month of not taking caber, am now I am back above the reference range. I can’t imagine how I’d be feeling in April, and how high my levels would’ve been had I not checked. That would explain why I feel like I’ve literally made 0 progress… 

I think it’s worth mentioning, my November test, January test, and February test was not ordered by her. All those tests I called and ordered, because I want this to be taken care of and monitored properly. She has show no interest in monitoring me, or even speaking to me for that matter.. I am always relayed back to her nurses, after countlessly requesting her. She thinks none of the issues I’m having is from my prolactin ranges, despite me telling her how much it benefited my sexual health and mental health early on. Is it time to find someone else? I genuinely feel she is dropping the ball here? Should I resume taking caber again at a small dose instead of wait to see what she says? I’m seeing my urologist this Wednesday and I’m gonna see what he thinks, he’s been far more helpful than my endo during all of this 

So confused(possible endo change)