Finally Saw a Neurologist and I do not like him at all.

I started having symptoms in 2022 ( only troubles chewing and speaking) they'd come and go, sometime months without a flare up. Recently I also started having issues swallowing water or thin liquids.

Couple weeks ago I was admitted in the hospital emergency and after 15 hours the hospital. I went in for dehydration. They ended up noticing fluid in my Pleural area and a partial collapsed lung ( the bottom part) the doc figured it was from aspiration when swallowing.

In the hospital I was put on a soft diet and mildly thickened fluids and 90mg of mestinon 3 times a day.

Fastforward to now being out of the hospital

The pills have been working amazing for me. I can drink and eat anything really. Well last thursday I had a meeting with a neurologist finally.

I found him arrogant and just a prick. As soon as I got into his office I started talking with a lisp... very odd since that has not happened since I've been on the pills. He asked me how I felt on the pills. I said great! I can drink and eat anything! ( the only issues I knew I had) he replied - well its not a cure but only masking the issue. I found that response odd.

He did strength tests and I passed with flying colors. I had issues doing one legged toe raises and the pushing my tongue to the side of my cheek while he presses on the outside - I had no resistence. He did not do a EMG but hooked electrodes to my hand and shocked me.

He asked me to lie down which I told him I have issues lying down on my back because I'm 440 pounds and it puts a lot of pressure on my lungs. He said you need to be like that for 15-30 mins. I said I can't do that without breaks. WHile on my back I breathed thru my mouth rapidish to calm myself down. later on in discussion he brought it up and I said yes I told you I am not good on my back and I was breathing that way to calm myself.

after the hand test he said he had enough information to say I have generalized MG and immediately wanted me to get a ct scan ( thats a whole other issue with me ) and IV hemoglobin.

Now he didn't seem to care that these pills are working wonders for me, and of course made me do the tests without taking my morning dose. You'd think a decent Neurologist would do the same tests while I was on those pills to see how different the results where. Nope.

Just booked me for those things. I find those odd as I looked them up and they seem to be more for people who's conditions have gotten worse or something to do with a crisis or prepping for surgery or oral medication isn't working for them.

I do not fit any of those categories. Even my mother's cousin - who's mom had MG way worse than I do went with the Mestinon and steroids and that worked wonders for her.

Now, maybe I am wrong but I feel he's booking unnecessary procedures right now considering the pills are working. I said I might consider a second opinion and he was very arrogant and said I'm sure my colleagues will agree with me.

As I said before he came off as very arrogant with zero compassion, just did the tests and went right to the extreme procedures considering my symptoms and did not even consider how the pills where working and that might be enough for me.....

I feel the IV is a little bit overkill right now
Am I wrong for thinking I should, somehow, get a second opinion?

Its very frustrating for me because the pills are working. Not to mention his google reviews do not paint a nice picture of him - and after my experience with him - they are 100% accurate