What age did you start getting dislocations/subluxations
Are there people here who only started to deal with dislocations and subluxations later in life? Could it still start if you make it through your 20s without them?
Context, diagnosed hEDS independently by two seperate specialists and meet all the criteria but have oddly few joint related issues. I have frank instability in quite some joints but have never really dislocated/subluxed something apart from the joints that move through subluxy ranges of motion painlessly. Wonder if anyone started here but moved to full dislocations. I worry sometimes, though I do a lot of strength training to try preserve and I am curious about others experiences.
Posted Feb 19, 2026, 3:47 PM UTC
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