Flaring?
Looking for some advice and reassurance. I’ve been experiencing really awful symptoms over the last week. Dizziness/heaviness like I’ve never experienced. It’s like my eyes and head have more gravity? I work on the 2nd floor of my building and I’ve stopped going up the stairs the last 2 days because it feels like my airway is constricted (partially from anxiety) and I can’t catch my breath. Taking the elevator is almost as bad because it disorients me so badly that I can’t walk straight. It takes a lot of effort to do it each morning. The evenings aren’t much better when I leave because I have to walk “uphill” to get back to my vehicle and that hits me hard.
I’ve been watching my blood pressure (mine goes up with my pots) and it’s been relatively high lately (140-150 / 95-105)
I can barely get around without feeling like I’m gonna pass out or stop breathing. It’s frustrating as hell. Left a note with my doc, but I’m trying to convince myself I’m not dying. The propranolol is doing its job because my heart rate stays around 80-100 when I feel like crap. O2 is good at 98.
Can anyone tell me if this is normal with dysautonomia? I was told I might have adrenergenic but idk. Thanks!
Posted Feb 19, 2026, 10:11 PM UTC