Recent diagnosed iih and maybe spontaneous csf leak?
Recently got diagnosed with iih after years of migraines, severe eye pain and ms like symptoms. I got a large swelling on my back at the same time that went down when they did the lumbar puncture to diagnose the iih. It came back a few days later and now its pretty swollen and so is my upper thigh. My lower spine is also hurting and I’m nauseated and dizzy when standing. Im thinking i developed a spontaneous csf leak before the lumbar puncture that the topomax I’ve started isn’t controlling. Any similar experiences?
Posted Feb 26, 2026, 3:20 AM UTC
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