I'm scared to leave my house
Ive left my house 4 times in the past 19 days. But I haven't left my house in a week. I feel like I can't. I had intense PEM on Friday after I went to work for 4hrs on Thursday. I really wanted to go to the pharmacy on my own this weekend but I'm scared of the repercussions.
My condition has worsened drastically in the past month. I stupidly took sunosi for a month, felt on top of the world. This was when I only had surface level knowledge of ME/CFS (newly diagnosed but have been going to doctors for 18 months).
Now I'm questioning how long I'll be like this. Do I do a short trip and see how it goes? I'm only out of bed for 3-4 hrs and this is broken up.
Posted Mar 1, 2026, 1:43 AM UTC
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