tle or something else

Question

my dr has suspected Ive had dysautonomia for a while now however things recently got a lot worse & i feel just completely lost because i feel like thats not related to this. for months I was feeling like I was dizzy/lightheaded could pass out then found out my ferritin was really low. fixed that. not much improvement & now after some freak episode the other night of what felt like squeezing in my chest it was central squeeze, tops of my shoulder squeeze & left side of my neck squeezed simultaneously & then 5 minutes later blood pulling from my hands i went to the er 3 separate times, seen 2 cardiologists & my primary & have no answer. after that night i kept getting what i can only describe as adrenaline dumps. theyd come on random & feel like my head was filling up with blood & like blood was pulling out my hands. i got stuck with a hr of 100-116 despite my hr being pretty much normal weeks ago. they put me on metoprolol which helped but now my blood pressures tanked. i got off that & my hr been normal again. i thought things were getting better but was just sitting on the couch & it started happening again. feels like blood just rushing to my head along with pressure then it just goes away. i also have been waking up multiple times in the night & feel like i want to jump out my skin. when im having these attacks or surges whatever you wanna call them i feel like i can barely speak 4 sentences without being out of breath & my mouth is so dry. i feel like i could pass out & never do. has anyone experienced this? any help would be appreciated. ive had normal cardiac work ups & drs are stumped. now working with my psychiatrist who thinks this COULD be multiple panic attacks? but also what the hell is the squeezing? this has happened multiple times. it started 2 years ago after i had my son and then just disappeared and now has come back to scare tr v shit out of me. again ive gotten no answers. before this i was getting an eeg to see if i had TLE due to deja vu dream like flashbacks old dreams popping up rising feeling in stomach i guess im just wondering if this could be seizure activity related since my cardiologist doesn’t know

what the hell im talking about

Posted Mar 4, 2026, 10:42 PM UTC

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