[PCP] List of dysautonomia specialist referrals

Hi all,

I’m a PCP who’s posted on here before + lurked a bunch. I’m currently helping a few colleagues setup a new virtual primary care practice focused on dysautonomia

We’ve found an urgent need for our patients is knowing which specialist(s) are best for their symptom patterns + infra (e.g., insurance, location)

To that end, we’re building a free & open directory of specialist physicians that are recommended by & for patients. While we'll add info like waitlist times, pricing, and insurance, we'd like the list itself to come from patients directly, based on their real experiences

Our asks:

1. What are your thoughts on this initiative? How can we build this in a way that provides real value for patients in the fastest way possible?
2. Where do you start searching for specialists today? Does something like this already exist?
3. Any advice you have for us PCPs as we build this out?

Finally, please ask any questions below (or DM if you prefer); this is a lighter week in clinic and I’ll try to get to everyone soon. And please submit any physicians you recommend (or don’t) so that all patients can benefit from your experience: textpascal.com/reddit