r/eds•
SMUnicorn

Vision problems, but constantly changing

Medical Advice Welcome

So I started to notice that I’m sometimes really struggling to see. It’s not sharp anymore and my eyes are really strained. But. It’s not all the time. Just sometimes. This can last for days/weeks or even just minutes.

I went to different experts: already been to ophthalmologist before, but they’ve never been able to diagnose something. I went to another ophthalmologists because I thought I might have BVD (cause my symptoms low key fit). When I listed my issues she immediately run some tests for BVD and was really sure about it (without me telling her about my assumption beforehand), but couldn’t find anything, besides somewhat bad vision of +1.25 and +1.5 and astigmatism. Went to our local optician for glasses. The glasses made my vision even worse, but my eyes weren’t as strained anymore. After two weeks of barely being able to see with glasses I went back to the optician who measured again and said my vision isn’t even that bad: +0.25 on both eyes. Got new glasses. They didn’t changed anything vision wise, but I got terrible headaches, my eyes hurt and felt nauseous all the time. After another appointment with my ophthalmologist I went to an optometrist who got even different results: +0.25 and -0.25. Lastly I went to our company doctor and she told me my vision is perfectly fine and I should schedule another appointment at another docs office and just tell them to check my eyes again because I might need glasses for my astigmatism.

I was so unsettled by this experience that I didn’t know what to do. I think glasses with vision correction aren’t helpful at all if my vision is constantly changing and I’m probably trying to get glasses just for my astigmatism this time

BUT does anyone know if this is EDS related? I got my diagnosis a while ago and whenever some issue is occurring im wondering if this might be related to hEDS and if that would change anything regarding the treatment

Posted Mar 5, 2026, 11:32 AM UTC

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