obinutuzumab

Hey everyone, so after having lupus for 16 years I ended up in a bad flare and hospital admission for 3 weeks. I thought right everything now is sorted on biological, meteoric, steroids and blood pressure medications. It was only just slowly stopping the lupus it seemed because my urine test were coming back worse as the months went on.

Fast forward I got a biopsy and I’ve been diagnosed with class 3. Since I’m already on Benlysta and myfortic it’s not working. My doctor offered me chemotherapy old style treatment or the new clinical trial obinutuzumab that’s just was approved in the UK. I’m so hoping that this works, because I really do not what to deal with the possibility of going down other routes. But he wants me on 40mg steroids for 3 months 😭😭

My biopsy kinda shocked the doctor because class 3 isn’t great but my urine and kidney function was not showing that class at all. But even with a bad infection after the biopsy I’m glad it was done because god knows what would happen after being left for longer. My lupus antibody’s are all over my kidneys and they’re active.

If anyone else has been able to start obinutuzumab and had good results and whatever side effects? It’s a lot stronger than Benlysta. I’m so glad there’s new treatments coming out, the risk of the treatments is nothing compared to what the lupus could do.