r/cfs•
Lozzybops

What does this sound like to you?

Advice

Background: I have a diagnosis of POTs and ME/CFS. My mum has fibromyalgia. Also posted this in r/fibromyalgia

I have a jumble of symptoms that have all been hitting me in the last few weeks.

For a little while now I’ve been feeling a weird pain in my body, mostly in my arms and legs but also accompanied by headaches that vary from mild to migraine level. The weird pain for me feels a bit like the nervy pain of when you hit your funny bone, or the stretchy nerve pain you feel when you sit down with straight legs in front of you and reach to touch your toes, like you might do in a yoga class or similar. Like it’s not muscles stretching, it’s the nerves. It feels achey and also I would say it feels like a lactic acid build up, like when you’ve done extensive exercise on your muscles but I get it from just walking up stairs or doing a few knee bends. It feels also sometimes like I’m itching from the inside out (I do also get very restless legs at night that is extremely itchy from the inside and prevents sleep) where I feel I must tense the muscle over and over so that it tires out in order to relieve it. Additionally in the last week my right hand feels very bruised, it started in my middle finger knuckle and seems to just be spreading and spreading through my hand like as if it’s been beaten up and is aching.

Lastly I have had more pins and needles than usual, including a random time I felt sharp prickles on my face and genuinely thought it was raining and complained to my partner that I didn’t have an umbrella and he thought I was crazy. Never had it before.

Overall it’s quite mild pain, not enough to really upset me but I have had some days where I need a painkiller to take the edge off.

Posted Mar 5, 2026, 4:56 PM UTC

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