r/eds•
Spaceboy2xx1

Anyone else have a lot of oral manifestations?

Community Shenanigans

I didn't have a ton of physical symptoms as a kid- gastro issues, occasional migraines, issues with upper body strength, duck footed, etc.

But oh boy. My mouth.

1st of all, my pallete was too small. It had to be widened with a key. I actually spent a ton of time popping my jaw bc i thought it was like cracking your knuckles (??)

I had a tongue tie that nobody caught until my papa mentioned his- had to be fixed twice. Tonsils/adnoids that were fully blocking off my breathing when I slept.

Then there was my teeth. Majorly overcrowded. Years of crazy brace work, reverted back anyway. Always riddled with cavities, to this day. Extra teeth in the roof of my mouth that had to be dug out in the OR.

I was actually informed recently that my tooth that needs pulled has another extra tooth under it, that they suspect is an adult tooth.

Can't numb me, so crowded spacers fly out, wiggle slightly during cleanings (but my hygienist thinks i'm just tripping lol)

Side note, I am actually being put under general anesthesia to have 3 teeth pulled, then to have my fillings done, which i am so excited about.

Posted Mar 6, 2026, 4:03 AM UTC

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