Skin thickening phase intermittent?What’s your experience?

Discussion

43/F - hey guys I’m new to the autoimmune world and need some information. I suddenly had weird symptoms since September along with extreme rapid weight loss etc. many test later POs Ana and so far RNP. I then had a period of months where my skin itched hurt, tingled, lightened and darkened, etc. my upper thighs ,butt and thighs are atrophy and getting firm tissue. It’s in my chest face arms basically everywhere. But it is more significant in my lower legs by ankles. So after all the changes and bruises and dents in my legs….I feel like the skin is softened in a way?? It has a smooth texture and a weird pattern almost to the skin. I need information about the skin thickening phase…does it stop and get better for a bit then start again? I know everyone is different but I’d like to know you experience . Fyi I am black/chinese and I am mentioning that because there can be a difference in onset and how aggressive the disease is. So if you would share the body and skin changes because I don’t recognize my body .

Posted Mar 6, 2026, 9:55 PM UTC

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