Fabry Disease Day in Brussels – Free event on March 28, open to patients, families and healthcare professionals

Fabry Disease Day in Brussels

In April, Fabry Awareness Month brings attention to a rare inherited metabolic condition that still goes undiagnosed for years in many patients. This year, MetabERN and the Antwerp University Hospital (UZA) are marking the occasion a few days early with a full-day event in Brussels on March 28, 2026.

The programme covers clinical perspectives on cardiac and renal involvement, patient follow-up, and home support tools — with international experts including Dr. Uma Ramaswami (Royal Free Hospital) and Dr. Valentine Gillion (Cliniques universitaires Saint-Luc) among the speakers.

What makes this event a little different from a standard medical conference: there are also interactive workshops, including a Fabry family tree builder and a board game designed to explain the disease. Sessions will be held in multiple languages, with translation provided where possible.

Attendance is free. Registration is required.

Full details and registration link on the MetabERN website: 👉 https://metab.ern-net.eu/metabern-fabry-disease-day/