just want to rant about my recent hospital stay and doctor's bias
i just want to vent to people who get it lol, i feel like i'm going insane
so i went to the hospital after seeing my doctor as she was worried that i was potentially heading to crisis territory (unable to breath on my back, losing breath from slightest activity, struggling to take deep breaths and breathing with my neck and chest) + issues swallowing
mg started for me at the end of october - i could barely walk 5 steps, lift my arms, keep my head up, keep my eyes open, or speak. left the hospital after 2 weeks with a "likely FND" diagnosis because "my symptoms didn't match any known condition" and i tested negative for anti-ACHR + "we believe something else is going on at home and you'll be better in a few weeks" (aka you are taking antidepressants and have a history of mental health problems... despite you having been stable and in the best place mentally for 5 years now... lol)
skip forward to february, still unmedicated, getting progressively worse, been unable to work, life is imploding - finally get an SFEMG and am definitively diagnosed with MG, finding very clear and strong jitter/blocking in both areas tested.
specialist prescribes prednisone and mestinon, mestinon helps, prednisone is too low, raise it, start getting a little better sometimes but breathing is still not getting better, so cut to a few days ago at the hospital.
i went to the same hospital i went to the first time because it's a 2 min drive from my house and i was hopeful that now that there was essentially irrefutable evidence that this time would go better.
unfortunately i was assigned the same doctor, but i decided to give her the benefit of the doubt. i swear to god she did everything she could, despite having the SFEMG and a highly respected neuromuscular specialist diagnose me, to try and undermine my symptoms so she wouldn't have to admit she was wrong. the way she phrased her questions, assumptions she kept making, telling me all my labs and breathing tests were normal (when i can see my lab results online and the respiratory specialists would literally tell me the results as i did them lol), repeatedly asking me if i've had botox (implying i was lying about it to get different results on the SFEMG... like girl what have i done to make you think i am actually insane???? lmao), etc.
i don't consider myself a paranoid person, but omg, i have never felt so paranoid and suspicious of a person i am under the care of.
luckily i avoided crisis by just upping the prednisone again, still not able to breathe comfortably on my back and running out of breath easily, but i'll take it over being there right now. it's just unbelievable to me that doctors like this exist.
(bonus points for this hospital stay: they gave me an IV of something for heartburn in case of ventilation or something, and the nurse put it in wrong and it went interstitial and hoooo boy i thought i would pass out from the pain, plus they almost gave me more than double the amount of prednisone i was supposed to be taking - only reason they didn't is because i asked them to make sure lmao)
so anyways, not going to that hospital again LOL.
Posted Mar 14, 2026, 12:25 AM UTC