My journey so far

PKD and on the list in the greater Boston area for 6 years, 2 months, and 3 weeks. A few people offered to donate, none qualified. Last year i put a post on FB, which i never use and LinkedIn.

In the fall, I got an anonymous donor. They were not a match, but agreed todo a swap. They donated a month or so ago. I got a match a couple weeks ago.

During pre-op, the surgeon decided to remove my kidneys, which was a change of plans. He ssid they were quite large plus i had issues with stones and burst cysts.

During the surgery, it was decided that my gallbladder was not looking good, so that came out too. Quite a big/complex surgery around 6 hours. Around 3 hours later, I came out of the anesthesia.

Right now it’s about 48 hours after the end of the surgery. To be honest, it's been tough going. I have a large vertical incision, 2 drain, 1 foley catheter, and 3 iv (was 4). They empty the foley every hour, so sleep is in short spurts. Bloodwork, vitals, meds, iv and checking sugar every few hours.

I've only eaten a bit of solid food. I'm exhausted. I finally walked down the hall today. Ups and downs, ups and downs. They say I'll be here 5 days, but it's hard to see it right now. There's plenty more details, so ask me anything.

Tldr; 2 days post surgery and a rough recovery.