Seeking advice: Severe eye pain in scleroderma patient (dry eye treatment not helping)

Hello everyone,

My mother has scleroderma and for the past 2+ months she has been experiencing a persistent cutting/burning sensation in her eyes.

We have consulted two ophthalmologists, and both believe the symptoms are due to severe dry eyes, which I understand can be common in autoimmune conditions. She has been consistently using the prescribed eye drops:

•	Moistane (lubricating drops)

•	Cyclosporine eye drops

Unfortunately, the pain has not improved and seems to be getting worse. Over the last few weeks, the discomfort has intensified and she now experiences:

•	Pain radiating around the eye nerves and into the head

•	Occasional swelling around the eyes when the pain becomes severe

•	Episodes where the pain becomes quite unbearable

We are continuing follow-ups with doctors, but I wanted to ask the community as well:

Has anyone with scleroderma experienced similar eye symptoms?

If so, what treatments or approaches helped you manage it? (medications, therapies, lifestyle changes, specialist care, etc.) Could this something other than dry eyes?

I would truly appreciate any insights or experiences you are willing to share. This group has been incredibly helpful and supportive, and I’m very grateful for your guidance.

Thank you so much.