No one believes me

Advice

I think my 12 week old is having infantile spasms: nocturnal Myoclonic episodes

They typically are happening around the same time of night when I'm watching my baby in shifts, I was finally able to record it but just sent it to my Dr

I was in er and the nurse whitenessed something but said her he we er rate was fine so it's nothing and then failed to tell anyone about it - they apparently spoke to a neurologist and they said it's too early for these things to show ?? What- so I was brushed off and sent home

I finally caught one on camera tonight and am sending it again to my Dr. I hope they finally believe me what I've been experiencing and don't think I'm just anxious post partum

Our pulmonologist told us to have her evaluated when we went to our children's hospital but I forgot to ask them about the EEG because they were so focused on other stuff

I just feel like everyone is sick of me advocating for my child and now being dismissive thinking I'm crazy

Posted Mar 14, 2026, 7:11 AM UTC

24
Loading comments…