CSU & other auto immune conditions

Hi đź‘‹

I got diagnosed with CSU in October last year but it’s pretty well managed… maybe just a couple of fexofenadine a day to be in complete remission. This weekend I had a huge flare and needed to use TSC to help put it in remission, it even gave me a burny sensation when my hives came out as well as being insanely itchy.

In 2024 I was diagnosed with ulcerative proctitis, also thankfully in complete remission from just a small dose of UC medication (1g pentasa daily).

My question is, does anyone else have IBD and CSU together? I can’t help but feel this CSU is related to my gut. I did a full get health test and of course my results weren’t the best, bad in good bacteria, low in some good bacteria, leaky gut etc (although, it didn’t show a histamine intolerance).

For the last few weeks I’ve been really trying to work on my gut health, including kimchi, kombucha, supplementing vit D and probiotics and whole foods etc.

What I’m really struggling with is is having two autoimmune conditions but I guess luckily they’re both well managed with low-ish medication, so I should be grateful but I do feel incredibly frustrated by this and scared of like what’s next :( I know I shouldn’t live like that but is anyone else in a similar situation?

Posted Apr 1, 2026, 5:47 AM UTC

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