I’m going to ask my rheumatologist to get me in the managed access trial for Ianalumab

Study/Research

im allergic to hydroxychloroquine so I am on NOTHING except miebo and cevemeline. My whole body hurts. my head hurts. I am item of doctors playing hot potato with me. I am in so much pain every day and I’ve felt like crap for a year. I’m tired of this.

the thing isn’t rheum is sort of a bitch and I don’t think she wants me to get better.

Posted Apr 1, 2026, 8:29 PM UTC

1635
Loading comments…