How Do I Keep Up Hope? / How Do I Keep Going?

I'm genuinely not trying to like dwell in my self pity or anything and I get its still early I only found out I had hEDS for certain like a month and a half ago. It's just recently especially its been so hard to continue on I feel like I've lost so much in the last year or so since it started being an issue, almost all my old hobbies, life goals, I can't even work full time anymore, every morning I wake up and just get hit with this realization it wasn't some kind of nightmare. I feel so useless to the people around me.

I know things can get better or worse with time and I'm seeing my specialist and doing physio as often as I can afford but I just feel so sad and tired, I wish this wasn't how things turned out and I'm trying to work towards building some kind of a life I just don't know how to pull myself to do it when things hurt so bad.

I guess I'm just wondering how people who have been at this for a lot longer than me have managed to do it, any words of advice or suggestions.