Rheumatologist suspects early lupus and had me on hydroxychloroquine, but not sure if I should be on it since it’s only a speculation and I’m having side effects

I’ll start with my questions: 1) how and when did you get your diagnosis? 2) Have you experienced lightheadedness and/or anxiety as side effects of hydroxychloroquine?

I’ve had toe stiffness for 7 years now and have only recently began seeing a rheumatologist. Did MRI, x-ray, ultrasound, and bloodwork and the only notable findings are that ANA is positive (none of the other RA, Lupus related tests were positive) and there is inflammation on some of my toes based on the MRI and ultrasound. Tried Prednisone, which didn’t do anything to help with the stiffness. Rheumatologist wants me to start on hydroxychloroquine. It’s been a week since being on it and it’s giving me lightheaded and anxiety/panic attacks. Not sure if it’s worth being on this medication without a confirmed diagnosis…

Posted Apr 4, 2026, 1:22 PM UTC

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