I feel wrecked after a colonoscopy/endoscopy. Is this normal?
I have Crohn’s disease as well as a few other autoimmune diseases in addition to MCAS. This is the first time I’ve had these procedures since having severe issues with MCAS and finally being diagnosed with it. I feel like I’ve been hit by a freaking bus. I’ve never felt so bad after a colonoscopy before, and I’ve gotten these once a year for the past almost 15 years. I was in so much pain and so exhausted after the procedure yesterday. Today I look swollen everywhere, even my face. My stomach and my esophagus hurt so much that I don’t even want to eat and I try not to move. It’s not emergency level pain, but it’s enough that I’m definitely calling out of work.
Has anyone else with IBD experienced this? They took a lot more biopsies than I expected and my stomach is ultra tender. This hasn’t been my normal post-op experience, but maybe with MCAS it will be? How have you guys prepared for procedures with MCAS?
Posted Apr 8, 2026, 1:05 PM UTC